Sarah, Phelps County

Sarah is the full time caregiver for her son Kyle. He is 31 years old and has Duchenne Muscular Dystrophy, a progressive neuromuscular disease. Kyle was diagnosed at the age of four and lost the ability to walk at ten. Now he is only able to move two fingers and his eyes and still has full intellectual abilities. Luckily, Kyle qualifies for disability and Medicaid. Sarah however, is not as lucky. She makes $10,000 a year working as Kyle’s caregiver and applied for marketplace insurance after she and her husband divorced. She makes too little for the marketplace subsidies and because she is not technically the custodial parent of Kyle, she does not qualify for Medicaid. Sarah recently had to save up money to have skin cancer removed. She anxiously awaits the medical bills. If Medicaid expands in Missouri, Sarah would be among the hundreds of thousands of people that would gain health insurance. Sarah states, “I have to stay healthy, if I get sick, Kyle could get sick. My cold could be his pneumonia. His pneumonia could potentially kill him. I couldn’t live with myself if that happened. I have to be able to go to a doctor and right now I can’t afford it”.