Mist, Kansas City

Mist is a Kansas City resident that has been diagnosed with a disease called Ehlers-Danlos Syndrome or EDS. EDS is a rare disease that primarily affects connective tissue like skin and joints. This disease has led to heart conditions, hip issues, collagen mutation among other serious health concerns. Living with EDS makes it hard for Mist to stand for long periods of time as they tire easily. They lost their job in February because of the intensity of their disease. Mist has also been denied for disability and they are now left without income or medical care. Mist states that people with this disease tend to not get the medical care need. They have joined a support group on Facebook and have noticed that many people are in the same position as them, unable to work because of their condition and left without medical coverage.