Jodie, St. Louis

Jodie is a 40-year-old, St. Louis resident who was working as an engineer when she developed Myalgic Encephalomyelitis. When she lost her job, she had to turn to the Marketplace, because coverage under her husband’s insurance plan was too expensive. She found a plan that had reasonable premiums and good benefits. However, this past year her plan changed and her premiums increased. She says that if her Marketplace plan changes again in January, she doesn’t know how she will be able to afford it. Her deductible also increased from $6,500 to $10,000.

Now, Jodie is stuck paying out-of-pocket for all of her treatment, tests, and specialists visits. In March, she went to see a specialist. Even though she got nothing out of the visit, it still cost her more than a third of her family’s monthly income. This makes her “scared to see another doctor.” Jodie would really like to have her thyroid checked and have an MRI of her brain done, but she is afraid of how much it would cost. She believes that

“health care should not be a luxury afforded to the wealthy,” but “a right guaranteed to all.”