Real people’s lives are at stake: Bill’s Story

Lifelong Missourian Pamela shared this story when she called Senator Blunt:

“I’m calling again to make sure you understand what’s at stake for me and my family in the healthcare debate. I grew up in Missouri, the youngest of three. My older brother has autism and depends on Medicaid for care. When I was in grade school, my mother showed me a report on Willowbrook, a mental hospital where patients were left to rot in their own waste, naked and unattended for days on end. My mother looked me in the eye, told me that she’s fighting to keep my brother out of an institution because of inhumane care, and explained that one day this fight would be mine. That day is now.

I’m fighting hard to ensure my brother is the first man in our family to live past 62 years old. I spend hours on his health, his quality of life, his daily community involvement. And the last thing I need is less funding, less support, and fewer options. I’m calling to tell you that I will be relentless in this quest…because my mother was, my father was, and my brother deserves it.

My brother’s name is Bill. He’s 47. He loves trains, planes, the smell of vanilla, Kit Kats, lunch meat, walks, and contributing to his community. It took him years to learn to write his name, to use the bathroom, to sign basic requests. He’s amazing. He’s a Missourian. And he is why I’m on the phone talking to you about a reckless healthcare bill no one wants pushed by a historically unpopular president no one likes. This is what’s at stake. Bill’s quality of life and health is at stake. And this story is what I intend to share with you daily. Because I inherited this quest with love and appreciation, and my brother is more than worth it.”

Have you shared the story of how your family would be hurt by the House and Senate health care proposals? Please share your story with Missouri Health Care for All at

And please be sure to share your story with our Senators as well! Call (202) 224-3121 and ask to be connected to the office of Senator Roy Blunt, and then call again and ask to be connected to the office of Senator Claire McCaskill.

One Comment

  1. My husband (with cerebral palsy and diabetes) was born and raised in Missouri, but we now live in the Metro East area of Illinois so his story won’t apply here. Fortunately, both our Senators (but not the representative) do not support this bill the Republicans are pushing through. With our pre-existing conditions, the ACA has helped us maintain our health over these past 3 years, but we’re afraid of losing everything we have. We are seriously considering leaving the country to seek some sort of sanctuary somewhere else.

    Kathy Davenport

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